ORCA
Online Research @ Cardiff
Browse by Current Cardiff authors
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Number of items: 34.
| Yuen, Jeanette, Lee, Suat Y., Courtney, Eliza, Lim, John, Soh, Hazel, Li, Shao T., Chen, Yanni, McAllister, Marion, Fenwick, Eva K. and Ngeow, Joanne 2020. Evaluating empowerment in genetic counseling using patient-reported outcomes. Clinical Genetics 97 (2) , pp. 246-256. 10.1111/cge.13646 |
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| Grant, Peter E., Pampaka, Maria, Payne, Katherine, Clarke, Angus and McAllister, Marion 2019. Developing a short-form of the Genetic Counselling Outcome Scale: The Genomics Outcome Scale. European Journal of Medical Genetics 62 (5) , pp. 324-334. 10.1016/j.ejmg.2018.11.015 |
    
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| Muñoz-Cabello, Patricia, Garcia-Minaur, Sixto, Espinel-Vallejo, Manuel Eliecer, Fernández-Franco, Lorenzo, Stephens, Alexandra, Santos-Simarro, Fernando, Lapunzina-Badia, Pablo and McAllister, Marion 2018. Translation and cross-cultural adaptation with preliminary validation of GCOS-24 for use in Spain. Journal of Genetic Counselling 27 (3) , pp. 732-743. 10.1007/s10897-017-0154-z |
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| Costal Tirado, Adriana, McDermott, Aoife Mary, Thomas, Charlene, Ferrick, Daniel, Harris, Justin, Edwards, Andrea and McAllister, Marion 2017. Using patient-reported outcome measures for quality improvement in clinical genetics: an exploratory study. Journal of Genetic Counseling 26 (5) , pp. 1017-1028. 10.1007/s10897-017-0079-6 |
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| Davison, Niall, Payne, Katherine, Eden, Martin, McAllister, Marion, Roberts, Stephen A., Ingram, Stuart, Black, Graeme C.M. and Hall, Georgina 2017. Exploring the feasibility of delivering standardized genomic care using ophthalmology as an example. Genetics in Medicine 19 (9) , pp. 1032-1039. 10.1038/gim.2017.9 |
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| Diness, Birgitte Rode, Overbeck, Gritt, Hjortshøj, Tina Duelund, Hammer, Trine Bjørg, Timshel, Susanne, Sørensen, Else and McAllister, Marion 2017. Translation and adaptation of the genetic counselling outcome scale (GCOS-24) for use in Denmark. Journal of Genetic Counselling , pp. 1-10. 10.1007/s10897-017-0086-7 |
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| Hooker, G. W., Babu, D., Myers, M. F., Zierhut, H. and McAllister, Marion 2017. Standards for the reporting of genetic counseling interventions in research and other studies (GCIRS): an NSGC task force report. Journal of Genetic Counselling 26 (3) , pp. 355-360. 10.1007/s10897-017-0076-9 |
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| Eisler, I., Flinter, F., Grey, J., Hutchison, S., Jackson, C., Longworth, L., MacLeod, R., McAllister, Marion, Metcalfe, A., Patch, C., Cope, B., Robert, G., Rowland, E. and Ulph, F. 2016. Training genetic counsellors to deliver an innovative therapeutic intervention: their views and experience of facilitating multi-family discussion groups. Journal of Genetic Counselling 26 (2) , pp. 199-214. 10.1007/s10897-016-0008-0 |
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| Eisler, I., Ellison, M., Flinter, F., Grey, J., Hutchison, S., Jackson, C., Longworth, L., MacLeod, R., McAllister, Marion, Metcalfe, A., Murrells, T., Patch, C., Pritchard, S., Robert, G., Rowland, E. and Ulph, F. 2016. Developing an intervention to facilitate family communication about inherited genetic conditions, and training genetic counsellors in its delivery. European Journal of Human Genetics 24 (6) , pp. 794-802. 10.1038/ejhg.2015.215 |
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| Brunstrom, Kate, Murray, Alexandra and McAllister, Marion 2016. Experiences of women who underwent predictive BRCA 1/2 mutation testing before the age of 30. Journal of Genetic Counselling 25 (1) , pp. 90-100. 10.1007/s10897-015-9845-5 |
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| Bravo, Paulina, Edwards, Adrian G., Barr, Paul James, Scholl, Isabelle, Elwyn, Glyn and McAllister, Marion 2015. Conceptualising patient empowerment: a mixed methods study. BMC Health Services Research 15 , 252. 10.1186/s12913-015-0907-z |
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| 2015. Valuing preferences for the process and outcomes of clinical genetics services: A pilot study. The Patient - Patient-Centered Outcomes Research 9 (2) , pp. 135-147. 10.1007/s40271-015-0133-0 |
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| McAllister, Marion and Dearing, Audrey 2014. Patient reported outcomes and patient empowerment in clinical genetics services. Clinical Genetics 88 (2) , pp. 114-121. 10.1111/cge.12520 |
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| Payne, Katherine, McAllister, Marion and Davies, Linda M. 2013. Valuing the economic benefits of complex interventions: when maximising health is not sufficient. Health Economics 22 (3) , pp. 258-271. 10.1002/hec.2795 |
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| Coombs, Ryan, McAllister, Marion, Payne, Katherine, Lowndes, Jo, Devery, Sophie, Webster, Andrew R, Downes, Susan M, Moore, Anthony T, Ramsden, Simon, Black, Graeme and Hall, Georgina 2013. Understanding the impact of genetic testing for inherited retinal dystrophy. European Journal of Human Genetics 21 (11) , pp. 1209-1213. 10.1038/ejhg.2013.19 |
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| McAllister, Marion, Dunn, Graham, Payne, Katherine, Davies, Linda and Todd, Chris 2012. Patient empowerment: The need to consider it as a measurable patient-reported outcome for chronic conditions. BMC Health Services Research 12 (1) , pp. 157-164. 10.1186/1472-6963-12-157 |
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| McAllister, Marion, Wood, Alex M., Dunn, Graham, Shiloh, Shoshana and Todd, Chris 2012. The perceived personal control (PPC) questionnaire: Reliability and validity in a sample from the United Kingdom. American Journal of Medical Genetics Part A 158A (2) , pp. 367-372. 10.1002/ajmg.a.34374 |
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| Myring, Jessica, Beckett, William, Jassi, Rupinder, Roberts, Theresa, Sayers, Richard, Scotcher, Diana and McAllister, Marion 2011. Shock, adjust, decide: reproductive decision making in Cystic Fibrosis (CF) carrier couples - a qualitative study. Journal of Genetic Counseling 20 (4) , pp. 404-417. 10.1007/s10897-011-9363-z |
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| McAllister, Marion, Wood, A. M., Dunn, G., Shiloh, S. and Todd, C. 2011. The genetic counseling outcome scale: a new patient-reported outcome measure for clinical genetics services. Clinical Genetics 79 (5) , pp. 413-424. 10.1111/j.1399-0004.2011.01636.x |
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| McAllister, Marion, Dunn, Graham and Todd, Chris 2011. Empowerment: qualitative underpinning of a new clinical genetics-specific patient-reported outcome. European Journal of Human Genetics 19 (2) , pp. 125-130. 10.1038/ejhg.2010.160 |
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| McAllister, Marion, Payne, Katherine, MacLeod, Rhona, Nicholls, Stuart, Donnai, Dian and Davies, Linda 2008. Patient empowerment in clinical genetics services. Journal of Health Psychology 13 (7) , pp. 895-905. 10.1177/1359105308095063 |
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| McAllister, Marion, Payne, Kate, MacLeod, R., Donnai, D. and Davies, L. 2008. Developing outcome measures for clinical genetics services: a triangulation approach [Abstract]. Psychology and Health 23 (S1) , pp. 179-180. 10.1080/08870440802299543 |
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| McAllister, Marion, Payne, Kate, MacLeod, R., Donnai, D. and Davies, L. 2008. Patient empowerment in clinical genetics services: a new model developed from qualitative research [Abstract]. Psychology and Health 23 (S1) , p. 179. 10.1080/08870440802299543 |
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| Payne, Katherine, Nicholls, Stuart, McAllister, Marion, MacLeod, Rhona, Donnai, Dian and Davies, Linda M. 2008. Outcome measurement in clinical genetics services: a systematic review of validated measures. Value In Health 11 (3) , pp. 497-508. 10.1111/j.1524-4733.2007.00259.x |
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| McAllister, Marion, Payne, Katherine, MacLeod, Rhona, Nicholls, Stuart, Donnai, Dian and Davies, Linda 2008. What process attributes of clinical genetics services could maximise patient benefits? European Journal of Human Genetics 16 (12) , pp. 1467-1476. 10.1038/ejhg.2008.121 |
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| McAllister, Marion, Davies, Linda, Payne, Katherine, Nicholls, Stuart, Donnai, Dian and McLeod, Rhona 2007. The emotional effects of genetic disease: implications for clinical genetics. American Journal of Medical Genetics Part A 143A (22) , pp. 2651-2661. 10.1002/ajmg.a.32013 |
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| Payne, Katherine, Nicholls, Stuart, McAllister, Marion, MacLeod, Rhona, Ellis, Ian, Donnai, Dian and Davies, Linda 2007. Outcome measures for clinical genetics services: A comparison of genetics healthcare professionals and patients' views. Health Policy 84 (1) , pp. 112-122. 10.1016/j.healthpol.2007.03.005 |
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| McAllister, Marion, Payne, Katherine, Nicholls, Stuart, MacLeod, Rhona, Donnai, Dian and Davies, Linda M. 2007. Improving service evaluation in clinical genetics: Identifying effects of genetic diseases on individuals and families. Journal of Genetic Counseling 16 (1) , pp. 71-83. 10.1007/s10897-006-9046-3 |
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| McAllister, Marion 2002. Predictive genetic testing and beyond: A theory of engagement. Journal of Health Psychology 7 (5) , pp. 491-508. 10.1177/1359105302007005628 |
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| McAllister, Marion, O'Malley, K., Hopwood, P., Kerr, B., Howell, A. and Evans, D. G. R. 2002. Management of women with a family history of breast cancer in the North West Region of England: training for implementing a vision of the future. Journal of Medical Genetics 39 (7) , pp. 531-535. 10.1136/jmg.39.7.531 |
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| McAllister, Marion 2001. Grounded theory in genetic counseling research. Journal of Genetic Counseling 10 (3) , pp. 233-250. 10.1023/A:1016628408498 |
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| McAllister, Marion, Evans, D. G., Ormiston, W. and Daly, P. 1998. Men in breast cancer families: a preliminary qualitative study of awareness and experience. Journal of Medical Genetics 35 (9) , pp. 739-744. 10.1136/jmg.35.9.739 |
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| McAllister, Marion, Kelly, C. T., Doyle, E. and Fogarty, W. M. 1990. The isomaltulose synthesising enzyme system of Serratia plymuthica. Biotechnology Letters 12 (9) , pp. 667-672. 10.1007/BF01088191 |
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