Browse by Current Cardiff authors

Adamson, Douglas, Byrne, Anthony, Porter, Catharine, Blazeby, Jane, Griffiths, Gareth, Nelson, Annmarie, Sewell, Bernadette, Jones, Mari, Svobodova, Martina, Fitzsimmons, Deborah, Nixon, Lisette, Fitzgibbon, Jim, Thomas, Stephen, Millin, Anthony, Crosby, Tom, Staffurth, John and Hurt, Christopher 2021. Palliative radiotherapy after oesophageal cancer stenting (ROCS): a multicentre, open-label, phase 3 randomised controlled trial. Lancet Gastroenterology and Hepatology 10.1016/S2468-1253(21)00004-2

Harrop, Emily, Morgan, Fiona, Longo, Mirella, Semedo, Lenira, Fitzgibbon, Jim, Pickett, Sara, Scott, Hannah, Seddon, Kathy, Sivell, Stephanie, Nelson, Annmarie and Byrne, Anthony 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34 (7) , pp. 871-888. 10.1177/0269216320920533

Harrop, Emily, Scott, Hannah, Sivell, Stephanie, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona, Pickett, Sara, Byrne, Anthony, Nelson, Annmarie and Longo, Mirella 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 , 29. 10.1186/s12904-020-0532-4

Clare, White, Noble, Simon, Swan, Flavia, Watson, Max, Allgar, Victoria, Eoin, Napier, Nelson, Annmarie and Johnson, Miriam 2020. Hospice inpatient deep vein thrombosis detection (HIDDen) in advanced non-malignant diseases: a longitudinal pilot study. BMJ Supportive and Palliative Care 10.1136/bmjspcare-2019-002039

Noble, Simon, Nelson, Annmarie, Scott, Jill, Berger, Anne, Schmidt, Karen, Swarnkar, Parinita and Lee, Agnes 2020. Patient experience of living with cancer-associated thrombosis in Canada (PELICANADA). Research and Practice in Thrombosis and Haemostasis 4 (1) , pp. 154-160. 10.1002/rth2.12274

Mann, Mala, Woodward, Amanda, Nelson, Annmarie and Byrne, Anthony 2019. Palliative Care Evidence Review Service (PaCERS): a knowledge transfer partnership. Health Research Policy and Systems 17 (1) , 100. 10.1186/s12961-019-0504-4

Newman, Alisha, Longo, Mirella, Edwards, Howell, Nelson, Annmarie, Byrne, Anthony and Lewis, Mel 2019. An evaluation of the Cardiff and Vale University Health Board weekend and bank holiday specialist palliative care clinical nurse specialist service. [Project Report]. Cardiff: Marie Curie Palliative Care Research Centre.

Smith, Pamela, Poole, Ria, Mann, Mala, Nelson, Annmarie, Moore, Graham and Brain, Katherine 2019. Systematic review of behavioural smoking cessation interventions for older smokers from deprived backgrounds. BMJ Open 9 (11) , e032727. 10.1136/bmjopen-2019-032727

Byrne, Anthony, Sivell, Stephanie, Moraes, Fabio Ynoe, Bulbeck, Helen, Torrens-Burton, Anna, Bernstein, Mark, Nelson, Annmarie and Fielding, Helen 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019 (9) , CD013440.. 10.1002/14651858.CD013440

Hopewell-Kelly, Noreen, Baillie, Jessica, Sivell, Stephanie, Harrop, Emily, Bowyer, Anna, Taylor, Sophia, Thomas, Kristen, Newman, Alisha, Prout, Hayley Christine, Byrne, Anthony, Taubert, Mark and Nelson, Annmarie 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9 (2) , pp. 219-224. 10.1136/bmjspcare-2015-000889

Nelson, Annmarie, Mann, Mala and Staffurth, John 2019. Methods of assessing late radiotherapy effects on bowel function. Current Opinion in Supportive and Palliative Care 13 (2) , pp. 134-141. 10.1097/SPC.0000000000000422

Bowyer, Anna Victoria, Finlay, Ilora Gillian, Baillie, Jessica, Byrne, Anthony, McCarthy, Jacqui, Sampson, Catherine, Snow, Veronica and Nelson, Annmarie 2019. Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study. BMJ Supportive & Palliative Care 9 (1) , e17. 10.1136/bmjspcare-2015-000920

Sivell, Stephanie, Prout, Hayley Christine, Hopewell-Kelly, Noreen, Baillie, Jessica, Byrne, Anthony, Edwards, Michelle, Harrop, Emily, Noble, Simon, Sampson, Catherine and Nelson, Annmarie 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 , e14. 10.1136/bmjspcare-2015-000892

White, Clare, Noble, Simon I. R., Watson, Max, Swan, Flavia, Allgar, Victoria L., Napier, Eoin, Nelson, Annmarie, McAuley, Jayne, Doherty, Jennifer, Lee, Bernadette and Johnson, Miriam J. 2019. Prevalence, symptom burden, and natural history of deep vein thrombosis in people with advanced cancer in specialist palliative care units (HIDDen): a prospective longitudinal observational study. Lancet Haematology 6 (2) , e79-e88. 10.1016/S2352-3026(18)30215-1

Palmieri, Maria, Morgan, Fiona, Longo, Mirella, Gregory, Clive, Nelson, Annmarie and Hepburn, Julie 2018. 56 Rapid review of dissemination strategies and activities as listed in published protocol papers. BMJ Supportive and Palliative Care 8 (3) , pp. 381-382. 10.1136/bmjspcare-2018-mariecurie.56

Mann, Mala, Nelson, Annmarie, Woodward, Amanda, Islam, Ishrat and Byrne, Anthony 2018. Evidence into practice: novel approaches to underpinning evidence-based innovations in care. BMJ Supportive & Palliative Care 8 (3) , 382. 10.1136/bmjspcare-2018-mariecurie.57

Longo, Mirella, Scott, Hannah, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona, Pickett, Sara, Byrne, Anthony, Sivell, Stephanie, Nelson, Annmarie and Harrop, Emily 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) , 371. 10.1136/bmjspcare-2018-mariecurie.30

Morgan, Fiona, Scott, Hannah, Longo, Mirella, Byrne, Anthony, Fitzgibbon, Jim, Nelson, Annmarie, Pickett, Sara, Seddon, Kathy, Sivell, Stephanie and Harrop, Emily 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3) , pp. 380-381. 10.1136/bmjspcare-2018-mariecurie.54

Seddon, Kathy, Fitzgibbon, Jim, Harrington, Barbara, Morgan, Fiona, Scott, Hannah, Sivell, Stephanie, Pickett, Sara, Longo, Mirella, Byrne, Anthony, Nelson, Annmarie and Harrop, Emily 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3) , pp. 374-375. 10.1136/bmjspcare-2018-mariecurie.40

Prout, Hayley C., Barham, Allan, Bongard, Emily, Tudor-Edwards, Rhiannon, Griffiths, Gareth, Hamilton, Willie, Harrop, Emily, Hood, Kerry, Hurt, Chris N., Nelson, Rosie, Porter, Catherine, Roberts, Kirsty, Rogers, Trevor, Thomas-Jones, Emma, Tod, Angela, Yeo, Seow Tien, Neal, Richard D. and Nelson, Annmarie 2018. Patient understanding and acceptability of an early lung cancer diagnosis trial: a qualitative study. Trials 19 , 419. 10.1186/s13063-018-2803-4

Newman, Alisha, Allnatt, Gemma, Nelson, Annmarie and Byrne, Anthony 2018. Results of a survey of support to adult care homes in Wales: A specialist palliative care provider perspective. [Project Report]. Cardiff: Marie Curie Palliative Care Research Centre.

Baillie, Jessica, Anagnostou, Despina, Sivell, Stephanie, Van Godwin, Jordan, Byrne, Anthony and Nelson, Annmarie 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17 , 60. 10.1186/s12904-018-0314-4

Wasley, David, Gale, Nichola, Roberts, Sioned, Backx, Karianne, Nelson, Annmarie, van Deursen, Robert and Byrne, Anthony 2018. Patients with established cancer cachexia lack the motivation and self-efficacy to undertake regular structured exercise. Psycho-Oncology 27 (2) , pp. 458-464. 10.1002/pon.4512

Harrop, Emily, Nelson, Annmarie, Rees, Helen, Harris, Dylan and Noble, Simon 2018. The challenge pathway: a mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (innovative practice). Dementia 17 (2) , pp. 252-257. 10.1177/1471301217729532

Fitzgibbon, Jim, Cleary, Kate and Nelson, Annmarie 2017. Embedding patient and public involvement and engagement in a cancer research centre. In: Velikova, Galina, Fallowfield, Lesley, Younger, Jane, Board, Ruth E and Selby, Peter eds. Problem Solving in Patient-Centred and Integrated Cancer Care, United Kingdom: EBN Health, pp. 92-96.

Harrop, Emily, Noble, Simon, Edwards, M, Sivell, Stephanie, Moore, B and Nelson, Annmarie 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39 (8) , pp. 1448-1464.

Anagnostou, Despina, Sivell, Stephanie, Noble, Simon, Lester, Jason, Byrne, Anthony, Sampson, Catherine, Longo, Mirella and Nelson, Annmarie 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7 (7) , e015277. 10.1136/bmjopen-2016-015277

Neal, Richard D., Barham, Allan, Bongard, Emily, Tudor Edwards, Rhiannon, Fitzgibbon, Jim, Griffiths, Gareth, Hamilton, Willie, Hood, Kerenza, Nelson, Annmarie, Parker, David, Porter, Cath, Prout, Hayley, Roberts, Kirsty, Rogers, Trevor, Thomas-Jones, Emma, Tod, Angela, Yeo, Seow Tien and Hurt, Chris N. 2017. Immediate chest X-ray for patients at risk of lung cancer presenting in primary care: randomised controlled feasibility trial. British Journal of Cancer 116 (3) , pp. 293-302. 10.1038/bjc.2016.414

Hills, M., Baillie, Jessica and Nelson, Annmarie 2017. Advance care planning for a preferred place of death: Do professionals ask children and young people what they want? Presented at: 8th International Cardiff Conference on Paediatric Palliative Care, Cardiff, 26-28 July 2017.

Harrop, Emily, Morgan, Fiona, Byrne, Anthony and Nelson, Annmarie 2016. “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC Palliative Care 15 , 92. 10.1186/s12904-016-0165-9

Noble, Simon, Pease, Nikki, Sui, Jessica, Davies, James, Lewis, Sarah, Malik, Usman, Alikhan, Raza, Prout, Hayley and Nelson, Annmarie 2016. Impact of a dedicated cancer-associated thrombosis service on clinical outcomes: a mixed-methods evaluation of a clinical improvement exercise. BMJ Open 6 (11) , e013321. 10.1136/bmjopen-2016-013321

Taylor, S., Byrne, A., Adams, R., Turner, J., Hanna, L., Staffurth, J., Farnell, D., Sivell, S., Nelson, A. and Green, J. 2016. The three-item ALERT-B questionnaire provides a validated screening tool to detect chronic gastrointestinal symptoms after pelvic radiotherapy in cancer survivors. Clinical Oncology 28 (10) , e139-e147. 10.1016/j.clon.2016.06.004

Taylor, Sophia, Weyinmi, Demeyin, Muls, Ann, Ferguson, Catherine, Farnell, Damian J. J., Cohen, David, Andreyev, Jervoise, Green, John, Smith, Lesley, Ahmedzai, Sam, Pickett, Sara, Nelson, Annmarie and Staffurth, John Nicholas 2016. Improving the well-being of men by Evaluating and Addressing the Gastrointestinal Late Effects (EAGLE) of radical treatment for prostate cancer: study protocol for a mixed-method implementation project. British Medical Journal Open 6 (10) , e011773. 10.1136/bmjopen-2016-011773

Harrop, Emily, Noble, Simon, Edwards, Michelle, Sivell, Stephanie, Moore, Barbara and Nelson, Annmarie 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) , 329. 10.1186/s13063-016-1460-8

Font, C., Garcia-Fernandez, T., Nelson, Annmarie, Prout, Hayley and Noble, Simon 2016. Patients' Experiences of LIving with CANcer associated thrOmbosis in Spain (PELICANOS). Thrombosis Research 140 (S1) , S199-S199. 10.1016/S0049-3848(16)30194-3

Taylor, Sophia Emily, Muls, Ann, Andreyev, Jervoise, Green, John, Farnell, Damian, Smith, Lesely, Ahmedzai, Sam H., Pickett, Sara, Ferguson, Catherine, Fitzsimmons, Deborah, Cambell, Susan, O'Shea, Raymond, Nelson, Annmarie and Staffurth, John Nicholas 2016. Late effects of pelvic radiation treatment (EAGLE study) [Abstract]. Journal of Clinical Oncology 34 (3) , p. 159. 10.1200/jco.2016.34.3_suppl.159

Harrop, Emily, Kelly, John, Griffiths, Gareth, Casbard, Angela C. and Nelson, Annmarie 2016. Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy). Trials 17 , 35. 10.1186/s13063-016-1173-z

Harrop, Emily, Godwin, Jordan van, Sivell, Stephanie, Baillie, Jessica, Byrne, Anthony and Nelson, Annmarie 2016. Palliative and End of Life Care Priority Setting Partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions.

Sampson, Cathy, Gill, Ben Hope, Harrison, Nicholas Kim, Nelson, Annmarie and Byrne, Anthony 2015. The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study. BMC Pulmonary Medicine 15 , 155. 10.1186/s12890-015-0145-5

Noble, Simon I., Nelson, Annmarie, Fitzmaurice, David, Bekkers, Marie-Jet, Baillie, Jessica, Sivell, Stephanie, Canham, Joanna, Smith, Joanna D., Casbard, Angela, Cohen, Ander, Cohen, David, Evans, Jessica, Fletcher, Kate, Johnson, Miriam, Maraveyas, Anthony, Prout, Hayley and Hood, Kerenza 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19 (83) , pp. 1-93. 10.3310/hta19830

Sivell, Stephanie, Lidstone, V., Taubert, Mark, Thompson, C. and Nelson, Annmarie 2015. Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study. BMJ Supportive & Palliative Care 5 (3) , pp. 306-315. 10.1136/bmjspcare-2013-000595

Treweek, Shaun, Altman, Doug G., Bower, Peter, Campbell, Marion, Chalmers, Iain, Cotton, Seonaidh, Craig, Peter, Crosby, David, Davidson, Peter, Devane, Declan, Duley, Lelia, Dunn, Janet, Elbourne, Diana, Farrell, Barbara, Gamble, Carrol, Gillies, Katie, Hood, Kerenza, Lang, Trudie, Littleford, Roberta, Loudon, Kirsty, McDonald, Alison, McPherson, Gladys, Nelson, Annmarie, Norrie, John, Ramsay, Craig, Sandercock, Peter, Shanahan, Daniel R, Summerskill, William, Sydes, Matt, Williamson, Paula and Clarke, Mike 2015. Making randomised trials more efficient: report of the first meeting to discuss the Trial Forge platform. Trials 16 , 261. 10.1186/s13063-015-0776-0

Prout, Hayley, Nelson, Annmarie and Noble, Simon 2015. The utility of PEmb-QoL and VEINES-QoL/Sym questionnaires in evaluating quality of life in the cancer associated thrombosis patient. Journal of Thrombosis and Haemostatis 13 (S2) , p. 548. 10.1111/jth.12993

Noble, Simon, Prout, Hayley and Nelson, Annmarie 2015. Patients experiences of living with cancer associated thrombosis: the PELICAN study [Abstract]. Journal of Thrombosis and Haemostasis 13 (S2) , p. 543. 10.1111/jth.12993

Sampson, Catherine, Hope-Gill, B, Harrison, N, Nelson, Annmarie and Byrne, Anthony 2015. Canopy: Care needs of patients with idiopathic pulmonaty fibrosis and their carers. BMJ Supportive & Palliative Care 5 (1) , p. 113. 10.1136/bmjspcare-2014-000838.30

Noble, Simon, Prout, Hayley and Nelson, Annmarie 2015. Patients' Experiences of LIving with CANcer-associated thrombosis: the PELICAN study. Patient Preference and Adherence 9 , pp. 337-345. 10.2147/PPA.S79373

Watts, Gareth J., Nelson, Annmarie, Lester, J. S. and Noble, Simon Ian 2015. Quality of life measures relating to the skin toxicities of tyrosine kinase inhibitor (TKI) use in lung cancer what is in current use in the literature? Lung Cancer 87 (S1) , S33. 10.1016/S0169-5002(15)50083-4

Mitchell, Helen, Noble, Simon Ian Robert, Finlay, Ilora Gillian and Nelson, Annmarie 2015. Defining the palliative care patient: its challenges and implications for service delivery. BMJ Supportive & Palliative Care 5 (4) , pp. 46-52. 10.1136/bmjspcare-2012-000220rep

Hopewell-Kelly, Noreen, Fitzgibbon, Jim, Baillie, Jessica and Nelson, Annmarie 2015. TACT: What impact does research partner involvement have on the working practices of a cancer clinical trials unit and academic research centre. BMJ Sipportive and Palliative Care 5 , pp. 107-108. 10.1136/bmjspcare-2014-000838.16

Sivell, Stephanie, Prout, Hayley, Baillie, Jessica, Byrne, Anthony, Edwards, Michelle, Harrop, Emily, Hopewell-Kelly, Noreen, Noble, Simon, Sampson, Catherine and Nelson, Annmarie 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 , 117. 10.1136/bmjspcare-2014-000838.40

Hopewell-Kelly, Noreen, Baillie, Jessica, Sivell, Stephanie, Bowyer, Anna, Thomas, Kristen, Prout, Hayley, Taylor, Sophia, Sampson, Catherine, Newman, Alicia and Nelson, Annmarie 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 , 120. 10.1136/bmjspcare-2014-000838.47

Best, Sabine, Tate, Theresa, Noble, Bill, Smith, Rhiannon, Tuft, Jennifer, Tracey, N., McCullugh, A., Eley, J., Black, J., Stockton, M., Cheeseley, A., Berry, L., Burton, C., Deschamps, A., Stevens, E., Penny, A., McEnhill, L., McNair, A., Cupid, B., Maseo, B., Chapman, D., McIllfatrick, S., Nelson, Annmarie, Sivell, Stephanie, Baillie, Jessica, Van Godwin, Jordan, Candy, Bridgit, Beaumont, N. and Cowan, Katherine 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015, London, UK, 27 March 2015.

Baillie, Jessica, Nelson, Annmarie, Sivell, Stephanie and Noble, S. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10th May 2015. pp. 2307-2312.

Sivell, Stephanie, Prout, Hayley, Baillie, Jessica, Byrne, A., Edwards, M., Harrop, Emily, Noble, S., Sampson, Catherine and Nelson, Annmarie 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

Smith, R., Best, T., Tate, T, Noble, B., Tuft, J., Eley, J., Black, J., Stockton, M., Cheeseley, A., Berry, L., Loftus, R., Dechamps, A., Stevens, E., Penny, A., McEnhill, L., McNair, A., Cupid, B., Fryett, S., Kerr, A., McIllfatrick, S., Nelson, Annmarie, Sivell, Stephanie, Baillie, Jessica, Godwin, Jordan, Candy, B. and Cowan, K. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

Hopewell-Kelly, Noreen, Baillie, Jessica, Sivell, Stephanie, Bowyer, A., Thomas, Kristen, Prout, Hayley, Taylor, Sophia, Newman, A., Sampson, Catherine and Nelson, Annmarie 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.

Hopewell-Kelly, Noreen, Fitzgibbon, Jim, Baillie, Jessica and Nelson, Annmarie 2015. TACT: what impact does research partner involvement have on the working practices of a cancer clinical trial unit and academic research Centre. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.

Fitzgibbon, Jim, Baillie, Jessica, Simon, Natalie and Nelson, Annmarie 2014. The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model. Patient Preference and Adherence 8 , pp. 1527-1535. 10.2147/PPA.S66734

Baillie, Jessica, Fitzgibbon, Jim, Simon, Natalie, Adams, Richard and Nelson, Annmarie 2014. Developing meaningful public involvement in a cancer clinical trials unit. Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, Italy, 20-21 November 2014.

Hopewell-Kelly, Noreen, Fitzgibbon, Jim, Baillie, Jessica and Nelson, Annmarie 2014. TACT: What impact does user involvement have on the working practices of a clinical trial research centre and academic research centre? Presented at: COMET IV Meeting: Core Outcome Measures in Effectiveness Trials, Rome, 20-21 November 2014.

Adamson, Douglas, Blazeby, Jane, Nelson, Annmarie, Hurt, Chris, Nixon, Lisette, Fitzgibbon, Jim, Crosby, Tom, Staffurth, John, Evans, Mim, Hopewell Kelly, Noreen, Cohen, David, Griffiths, Gareth and Byrne, Anthony 2014. Palliative radiotherapy in addition to self-expanding metal stent for improving dysphagia and survival in advanced oesophageal cancer (ROCS: Radiotherapy after Oesophageal Cancer Stenting): study protocol for a randomized controlled trial. Trials 15 , 402. 10.1186/1745-6215-15-402

Sampson, Catherine, Finlay, Ilora, Byrne, Anthony, Snow, Veronica and Nelson, Annmarie 2014. The practice of palliative care from the perspective of patients and carers. BMJ Supportive and Palliative Care 4 (3) , pp. 291-298. 10.1136/bmjspcare-2013-000551

Prentice, Joanna, Nelson, Annmarie, Baillie, Jessica, Osborn, Hannah and Noble, Simon Ian Robert 2014. 'Don't blame the middle man': an exploratory qualitative study to explore the experiences of translators breaking bad news. Journal of the Royal Society of Medicine 107 (7) , pp. 271-276. 10.1177/0141076814527275

Noble, Simon, Smith, Joanna D., Baillie, Jessica, Baglin, T., Griffiths, Gareth O., Casbard, Angela, Cohen, Deborah, Fitzmaurice, D., Hood, Kerenza, Rose, P., Cohen, A., Johnson, Miriam, Maraveyas, A., Bell, John, Toone, H. and Nelson, Annmarie 2014. ALICAT: Anticoagulation length in cancer associated thrombosis - a mixed-methods feasibility study. Thrombosis Research 133 (Supp 2) , S220-S220. 10.1016/S0049-3848(14)50032-1

Noble, Simon, Seaman, S. and Nelson, Annmarie 2014. Attitudes of cancer associated thrombosis patients to the novel oral anticoagulants: insights from qualitative interviews. Thrombosis Research 133 , S219-S219.

Seaman, Siwan, Nelson, Annmarie and Noble, Imon 2014. Cancer-associated thrombosis, low-molecular-weight heparin, and the patient experience: a qualitative study. Patient Preference and Adherence 8 , pp. 453-461. 10.2147/PPA.S58595

Maughan, T.S., Meade, A.M., Adams, Richard Alexander, Richman, S.D., Butler, R., Fisher, D., Wilson, R.H., Jasani, B., Taylor, G.R., Williams, Geraint, Sampson, Julian, Seymour, M.T., Nichols, L.L., Kenny, S.L., Nelson, Annmarie, Sampson, Catherine, Hodgkinson, E., Bridgewater, J.A., Furniss, D.L., Roy, R., Pope, M.J., Pope, J.K., Parmar, M., Quirke, P. and Kaplan, R. 2014. A feasibility study testing four hypotheses with phase II outcomes in advanced colorectal cancer (MRC FOCUS3): A model for randomised controlled trials in the era of personalised medicine? British Journal of Cancer 110 , pp. 2178-2186. 10.1038/bjc.2014.182

Seaman, Siwan, Nelson, Annmarie and Noble, Simon Ian Robert 2014. Is long-term low-molecular-weight heparin still acceptable to palliative care patients in the treatment of cancer-associated thrombosis? A qualitative study revisited. BMJ Supportive & Palliative Care 4 , A25. 10.1136/bmjspcare-2014-000654.69

Bowyer, Anna, Finlay, Ilora Gillian, Byrne, Anthony, McCarthy, Jackie, Harrop, Emily, Sampson, Catherine, Snow, V. and Nelson, Annmarie 2014. After iWantGreatCare: Service user feedback as a means of refining the iWantGreatCare questionnaire [Abstract]. BMJ Supportive & Palliative Care 4 (S1) , A47-A48. 10.1136/bmjspcare-2014-000654.133

Neal, R. D., Hurt, Chris Nicholas, Roberts, K., Rogers, T., Hamilton, W., Tudor Edwards, R., Tod, A. M., Parker, D., Thomas Jones, E., Nelson, Annmarie, Prout, H., Hood, Kerenza and Griffiths, G. 2014. A feasibility randomised controlled trial looking at the effect on lung cancer diagnosis of giving a chest X-ray to smokers aged over 60 with new chest symptoms – the ELCID trial [Abstract]. Lung Cancer 83 , S81-S82. 10.1016/S0169-5002(14)70220-X

Harrop, Emily, Byrne, Anthony and Nelson, Annmarie 2014. "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life. BMC Palliative Care 13 , p. 22. 10.1186/1472-684X-13-22

Smith, Joanna D., Baillie, Jessica, Baglin, Trevor, Griffiths, Gareth O., Casbard, Angela C., Cohen, David, Fitzmaurice, David A., Hood, Kerenza, Rose, Peter, Cohen, Alexander T., Johnson, Miriam, Maraveyas, Anthony, Bell, John, Toone, Harold, Nelson, Annmarie and Noble, Simon Ian Robert 2014. A feasibility study to inform the design of a randomized controlled trial to identify the most clinically and cost effective Anticoagulation Length with low molecular weight heparin In the treatment of Cancer Associated Thrombosis (ALICAT): study protocol for a mixed-methods study. Trials 15 (1) , 122. 10.1186/1745-6215-15-122

Noble, Simon Ian Robert, Baillie, Jessica, Smith, J., Baglin, T., Griffiths, G., Casbard, Angela C., Cohen, D., Fitzmaurice, D., Hood, Kerenza, Rose, P., Cohen, A., Johnson, M., Maraveyas, A., Bell, J., Toone, H. and Nelson, Annmarie 2014. Anticoagulation length in cancer associated thrombosis: a mixed-methods feasibility study. Presented at: International Conference on Thrombosis and Hemostasis Issues in Cancer, Bergamo, Italy, 9-11 May 2014.

Baillie, Jessica, Harrop, Emily, Hopewell-Kelly, Noreen, Stephens, K., Byrne, A. and Nelson, Annmarie 2014. Engaging minority ethnic communities to improve access to palliative care: Barriers and strategies. Presented at: Marie Curie Annual Palliative Care Research Conference, London, 28 March 2014. BMJ Supportive and Palliative Care. BMJ, 114-(P026). 10.1136/bmjspcare-2014-000653.28

Lucia, Alejandro, Maddocks, Matthew, Halliday, Vanessa, Chauhan, Alpna, Taylor, Victoria, Nelson, Annmarie, Sampson, Catherine, Byrne, Anthony, Griffiths, Gareth and Wilcock, Andrew 2013. Neuromuscular electrical stimulation of the quadriceps in patients with non-small cell lung cancer receiving palliative chemotherapy: a randomized phase II study. PLoS ONE 8 (12) , e86059. 10.1371/journal.pone.0086059

Nelson, Annmarie, Fenlon, Debbie, Morris, Jenny, Sampson, Catherine, Harrop, Emily, Murray, Nick, Wheatley, Duncan, Hood, Kerenza, Griffiths, Gareth and Barrett-Lee, Peter 2013. QUALZICE: A QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates. Trials 14 (1) , 325. 10.1186/1745-6215-14-325

Lidstone, Victoria, Sivell, Stephanie, Taubert, Mark, Thompson, Catherine and Nelson, Annmarie 2013. Transition in palliative care study day series. BMJ Supportive & Palliative Care 3 (S1) , A48-A49. 10.1136/bmjspcare-2013-000591.131

Sivell, Stephanie, Lidstone, Victoria, Taubert, Mark and Nelson, Annmarie 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know? Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013. European Journal of Palliative Care. suppl. p. 60.

Hurt, Chris Nicholas, Roberts, Kirsty, Rogers, Trevor K, Griffiths, Gareth O., Hood, Kerenza, Prout, Hayley Christine, Nelson, Annmarie, Fitzgibbon, Jim, Barham, Allan, Thomas-Jones, Emma, Edwards, Rhiannon, Yeo, Seow, Hamilton, William, Tod, Angela and Neal, Richard D 2013. A feasibility study examining the effect on lung cancer diagnosis of offering a chest X-ray to higher-risk patients with chest symptoms: protocol for a randomized controlled trial. Trials 14 (1) , 405. 10.1186/1745-6215-14-405

Byrne, Anthony, Sampson, Catherine, Baillie, Jessica, Harrison, Kim, Hope-Gill, Ben, Hubbard, Richard, Griffiths, Gareth and Nelson, Annmarie 2013. A mixed-methods study of the care needs of individuals with idiopathic pulmonary fibrosis and their carers--CaNoPy: a study protocol. BMJ Open 3 (8) , e003537. 10.1136/bmjopen-2013-003537

Baillie, Jessica, Fitzgibbon, J., Simon, N., Griffiths, G. and Nelson, Annmarie 2013. Supporting lay representatives and researchers: the role of the research partner coordinator at a clinical trials unit and palliative care research centre. Presented at: New Developments in Public Involvement in Research Conference, Exeter; UK, 13 15 November 2013.

Nawaz, S., Baillie, Jessica, Harrop, Emily, Byrne, A., Stephens, K. and Nelson, Annmarie 2013. Improving access to palliative care services for minority ethnic communities in Wales. Presented at: All Wales Palliative Care Conference, Powys; UK, 10 - 11 October 2013.

Baillie, Jessica, Harrop, Emily, Byrne, A., Stephens, K. and Nelson, Annmarie 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care by minority ethnic groups. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, 30 May - 2 June 2013. BMJ Supportive and Palliative Care. BMJ, p. 131. 10.1136/bmjspcare-2013-000453b.19

Harrop, Emily, Baillie, Jessica, Byrne, A., Stephens, K. and Nelson, Annmarie 2013. An evaluation of an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013.

Baillie, Jessica, Harrop, Emily, Byrne, A., Stephens, K. and Nelson, Annmarie 2013. Breaking down barriers: evaluating a Marie Curie Hospice project aimed at improving access to palliative care services by minority ethnic groups. Presented at: Marie Curie Annual Palliative Care Research Conference, London, UK, 28 March 2014.

Harrop, Emily, Baillie, Jessica, Byrne, A., Stephens, K. and Nelson, Annmarie 2013. Broadening access; an integrated specialist nurse led palliative care clinic within a general practice setting. Presented at: Marie Curie Annual Palliative Care Research Conference, London; UK, 28 March 2014. BMJ Supportive & Palliative Care. BMJ, p. 131. 10.1136/bmjspcare-2013-000453b.20

Sivell, Stephanie, Lidstone, Victoria, Taubert, Mark, Thompson, Catherine and Nelson, Annmarie 2013. 012 Improving the transition process for young people with life-limiting conditions. BMJ Supportive and Palliative Care 3 (A5) 10.1136/bmjspcare-2013-000591.12

Edwards, Michelle, Sivell, Stephanie, Harrop, Emily, Nelson, Annmarie, Hood, Kerenza, Griffiths, Gareth O., Byrne, A., Moore, Bethan, Ahmed, S. and Noble, Simon Ian Robert 2012. 110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG). Lung Cancer 75 (s1) , s36.

Vale, C., Fitzgibbon, Jim, Hanley, B., Muir, D., Murphy, C., Nelson, Annmarie, Stephens, R. and Yoing, B. 2012. Public involvement in clinical trials: supplement to the briefing notes for researchers. National Institute for Health Research.

Taubert, Mark and Nelson, Annmarie 2011. Heartsink encounters: a qualitative study of end-of-life care in out-of-hours general practice. Journal of the Royal Society of Medicine Short Reports 2 (9) , 70. 10.1258/shorts.2011.011020

Taubert, Mark and Nelson, Annmarie 2010. Out-of-hours GPs and palliative care-a qualitative study exploring information exchange and communication issues. BMC Palliative Care 9 , 18. 10.1186/1472-684X-9-18

Taubert, Mark and Nelson, Annmarie 2010. 'Oh God, not a Palliative': out-of-hours general practitioners within the domain of palliative care. Palliative Medicine 24 (5) , pp. 501-509. 10.1177/0269216310368580

Taubert, Mark and Nelson, Annmarie 2010. Strangers in the night - Out of hours doctors and palliative care patients. Presented at: The 8th Palliative Care Congress, Palliative Medicine. 24(2):217, 2010., Bournemouth, UK, 10-12 March 2010.

Noble, Simon Ian Robert, Nelson, Annmarie and Finlay, Ilora Gillian 2008. Factors influencing hospice thromboprophylaxis policy: a qualitative study. Palliative Medicine 22 (7) , pp. 808-813. 10.1177/0269216308096723

Johnson, H. M. and Nelson, Annmarie 2008. The acceptability of an information leaflet explaining cardiopulmonary resuscitation policy in the hospice setting: a qualitative study exploring patients' views. Palliative Medicine 22 (5) , pp. 647-652. 10.1177/0269216308088690

Noble, Simon Ian Robert, Nelson, Annmarie and Finlay, Ilora Gillian 2008. Challenges faced by palliative care physicians when caring for doctors with advanced cancer. Palliative Medicine 22 (1) , pp. 71-76. 10.1177/0269216307084607