Browse by Current Cardiff authors

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Calvert, Melanie and Byrne, Anthony 2023. Development of a core outcome set for use in adult primary glioma phase III interventional trials: A mixed methods study. Neuro-Oncology Advances 5 (1) , vdad096. 10.1093/noajnl/vdad096

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Medeiros Mirra, Renata, Goss, Silvia, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Farnell, Damian J.J. ORCID: https://orcid.org/0000-0003-0662-1927, Seddon, Kathy, Penny, Alison, Machin, Linda, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, Lucy E. 2023. Prolonged grief during and beyond the pandemic: factors associated with levels of grief in a four time-point longitudinal survey of people bereaved in the first year of the COVID-19 pandemic. Frontiers in Public Health 11 , 1215881. 10.3389/fpubh.2023.1215881

Goedegebuur, J., Abbel, D., Accassat, S., Achterberg, W.P., Akbari, A., Baddeley, Elin, Bax, J.J., Becker, B., Bergmeijer, D., Bertoletti, L., Blom, J.W., Calvetti, A., Cannegieter, S.G., Castro, L., Chavannes, C.H., Coma-Auli, N.R.N., Couffignal, C., Edwards, Adrian ORCID: https://orcid.org/0000-0002-6228-4446, Edwards, Michelle ORCID: https://orcid.org/0000-0001-7432-2828, Enggaard, H.R.N., Font, C., Gava, A., Geersing, G.J., Geijteman, E.C.T, Greenley, S., Gregory, Clive ORCID: https://orcid.org/0000-0003-4876-3982, Gussekloo, J., Hoffmann, I., Højen, A.A., Hout, van den W.B., Huisman, M.V., Jacobsen, S., Jagosh, J., Johnson, M.J., Jørgensen, L., Juffermans, C.C.M., Kempers, E.K., Konstantinides, S., Kroder, A.F., Kruip, M.J.H.A, Lafaie, L., Larsen, T.B., Lifford, K. ORCID: https://orcid.org/0000-0002-9782-2080, Linden, van der Y.M., Mahé, I., Maiorana, L., Maraveyas, A., Martens, E.S.L., Mayeur, D., Mens van, T.E., Mohr, K., Mooijaart, S.P., Murtagh, F.E.M, Nelson, A., Nielsen, P.B., Ording, A.G., Ørskov, M., Pearson, M., Poenou, G., Portielje, J.E.A., Raczkiewicz, D., Rasmussen, K., Trinks-Roerdink, E., Schippers, I., Seddon, K., Sexton, Keith, Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860, Skjøth, F., Søgaard, M., Szmit, S., Trompet, S., Vassal, P., Visser, C., Vliet, van L.M., Wilson, E., Klok, F.A. and Noble, S.I.R. ORCID: https://orcid.org/0000-0001-5425-2383 2023. Towards optimal use of antithrombotic therapy of people with cancer at the end of life: a research protocol for the development and implementation of the SERENITY shared decision support tool. Thrombosis Research 228 , pp. 54-60. 10.1016/j.thromres.2023.05.008

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Price, Delyth and Carson-Stevens, Andrew ORCID: https://orcid.org/0000-0002-7580-7699 2023. The challenges and experiences of providing end-of-life care in primary care: online survey and semi-structured interviews with UK primary care professionals. Presented at: RCGP Annual Conference 2023, Glasgow, 19-20 October 2023. British Journal of General Practice. , vol.73 (Suppl) Royal College of General Practitioners, 10.3399/bjgp23X733833

Fiddimore, Emma, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2023. 'I don't want to hear statistics, I want real life stories': systematic review and thematic synthesis of patient and caregiver experiences of Proton Beam Therapy. Journal of Psychosocial Oncology 41 (4) , pp. 434-456. 10.1080/07347332.2022.2136997

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy E. and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2023. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Publishing Group, A6. 10.1136/spcare-2023-MCRC.14

Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2023. Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 A6-A7. 10.1136/spcare-2023-MCRC.15

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Price, Delyth, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Holness, Andrew, Holmes, Sarah, Millington-Sanders, Catherine, Skerry, Giles and Carson-Stevens, Andrew ORCID: https://orcid.org/0000-0002-7580-7699 2023. Protocol to evaluate the implementation of the royal college of general practitioners and Marie Curie Daffodil Standards in UK general practice. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive and Palliative Care. , vol.13 BMJ Publishing Group, A8. 10.1136/spcare-2023-MCRC.19

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Price, Delyth and Carson-Stevens, Andrew ORCID: https://orcid.org/0000-0002-7580-7699 2023. Understanding the experiences of providing end-of-life care in UK general practices; preliminary data from an independent evaluation of the daffodil standards. Presented at: The Marie Curie Research Conference 2023, Virtual, 6-10 February 2023. BMJ Supportive & Palliative Care. , vol.13 BMJ Supportive and Palliative Care: BMJ Publishing Group, A8-A9. 10.1136/spcare-2023-MCRC.20

Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Seddon, Kathy, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. What should good bereavement service support look like? Findings from pre-pandemic workshop discussions interpreted in the context of the Covid-19 pandemic. Bereavement: Journal of Grief and Responses to Death 1 10.54210/bj.2022.1078

Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The impact of glioma on quality of life: findings from a mixed methods study to develop a core outcome set for glioma interventional trials (COBra Study). Presented at: International Society for Quality of Life Research (ISOQOL) 29th Annual Conference, Prague, Czech Republic, 19-22 October 2022.

Retzer, Ameeta, Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Melanie, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Cruz Rivera, Samantha, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Core outcomes in brain tumour trials – the COBra study review of glioma trial registration data. Presented at: BNOS 2022, Liverpool, 22-24 June 2022. Neuro-Oncology. , vol.24 Oxford University Press, 10.1093/neuonc/noac200.019

Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Scott, Hannah, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, Helen, Seddon, Kathy, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Kearns, Pamela, Rivera, Samantha Cruz, Dirven, Linda, Baddeley, Elin, Calver, Melani and Byrne, Anthony 2022. Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study. BMJ Open 12 , 057712. 10.1136/bmjopen-2021-057712

Baddeley, Elin, Retzer, Ameeta, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Bulbeck, H., Seddon, Kathy, Adams, R., Grant, R., Watts, C., Aiyegbusi, O. L., Rivera, S. C., Kearns, P., Dirven, L., Calvert, M. and Byrne, Anthony 2022. The importance of treatment tolerability for people with glioma: registry review and qualitative findings from the COBra Study. Presented at: European Association of Neuro-Oncology (EANO), Vienna, Austria, 15-18 September 2022. Neuro-Oncology. , vol.24 (2) Oxford Academic, ii47. 10.1093/neuonc/noac174.162

Walker, Louise and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2022. Breaking bad news in a cross-language context; a qualitative study to develop a set of culturally and linguistically appropriate phrases and techniques with Zulu speaking cancer patients. Patient Education and Counseling 105 (7) , pp. 2081-2088. 10.1016/j.pec.2022.01.007

Goss, Silvia, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baddeley, Elin, Griffiths, Lowri, Makuta, Gladys and Byrne, Anthony 2022. Development of a core outcome set for evaluating the effectiveness of adult palliative care services in Wales. [Project Report]. NHS Wales and Marie Curie Palliative Care Research Centre.

Mazzaschi, Francesca, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Brain, Katherine ORCID: https://orcid.org/0000-0001-9296-9748 and Powell, James 2022. 43 Cognitive changes experienced by patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A17-A18. 10.1136/spcare-2021-MCRC.43

Mazzaschi, Francesca, Peddle, Sarah, Seddon, Katherine, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2022. 53 Incorporation and evaluation of the patient and public involvement national standards within doctoral research focussed on the improvement of quality of life of patients with high-grade glioma. Presented at: 2022 Marie Curie Research Conference Improving End of Life, Virtual, 30 January - 04 February 2022. BMJ Supportive & Palliative Care. , vol.12 (Supple) BMJ Publishing Group, A22. 10.1136/spcare-2021-MCRC.53

Byrne, Anthony, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moraes, Fabio Ynoe, Bulbeck, Helen, Bernstein, Mark, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Fielding, Helen 2022. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers pub2. Cochrane Library 2022 (1) , CD013440.. 10.1002/14651858.CD013440.pub2

Baddeley, Elin, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Bulbeck, Helen, Retzer, Ameeta, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Calvert, Mia, Grant, Robin, Adams, Richard ORCID: https://orcid.org/0000-0003-3915-7243, Watts, Colin, Aiyegbusi, Olalekan Lee, Rivera, Samantha Cruz, Kearns, Pamela, Dirven, Linda and Byrne, Anthony 2022. Evaluation of patient and public involvement in the development of a patient reported outcome set in brain tumour trials (COBra Study). Presented at: National PROMs Annual Research Conference, National, 14-15 June 2022.

Goss, Silvia, Medeiros Mirra, Renata, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Sutton, Eileen, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Byrne, Anthony, Selman, Lucy and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2022. Bereavement during Covid-19: Findings from a UK-wide online survey on the use and impact of informal and formal support among people grieving during the pandemic. Presented at: European Grief Conference 2022, Copenhagen, Denmark, 21-23 September 2022.

Harrop, E. ORCID: https://orcid.org/0000-0003-2820-0023, Goss, S., Farnell, D. ORCID: https://orcid.org/0000-0003-0662-1927, Longo, M. ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, A., Barawi, K., Torrens-Burton, A. ORCID: https://orcid.org/0000-0002-2162-3739, Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425, Seddon, K., Machin, L., Sutton, E., Roulston, A., Finucane, A., Penny, A., Smith, K.V., Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860 and Selman, S.E. 2021. Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic. Palliative Medicine 35 (10) , pp. 1985-1997. 10.1177/02692163211043372

Mazzaschi, Francesca, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Brain, Katherine ORCID: https://orcid.org/0000-0001-9296-9748, Powell, James and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2021. Everyday memory and processing alteration in patients with high-grade glioma after radiotherapy: a mixed method, public survey. Presented at: 17th World Congress of the European Association for Palliative Care (EAPC 2021), Virtual, 06-08 October 2021. Palliative Medicine. , vol.35 (Supple) SAGE Publications, pp. 76-77. 10.1177/02692163211035909

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Selman, Lucy, Farnell, Damian ORCID: https://orcid.org/0000-0003-0662-1927, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Goss, Silvia, Sutton, Eileen, Seddon, Kathy, Machin, Linda, Penny, Alison, Roulston, Audrey, Carduff, Emma, Finucane, Anne, Smith, Kirsten V, Torrens Burton, Anna, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Mayland, Catriona, Wakefield, Donna, Johnston, Bridget and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2021. End of life and bereavement experiences during the COVID-19 pandemic: interim results from a national survey of bereaved people. Presented at: Palliative Care Congress 2021, Virtual, 25-26 March 2021. BMJ Supportive and Palliative Care. , vol.11 (Supple) BMJ Publishing Group, A3. 10.1136/spcare-2021-PCC.6

Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Jones, David, Radley, Lesley, Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2020. Holistic care: the clinical nurse specialist’s role in advanced lung cancer patients. Palliative Medicine 34 (Supple) , p. 79. 10.1177/0269216320958098

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Radley, Lesley, Jones, David, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213 2020. Chemotherapy decision-making in advanced lung cancer: a prospective qualitative study. BMJ Supportive & Palliative Care 10.1136/bmjspcare-2020-002395

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Ferreira Semedo, Lenira, Fitzgibbon, Jim, Pickett, Sara, Scott, Hannah, Seddon, Kathy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Byrne, Anthony 2020. The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis. Palliative Medicine 34 (7) , pp. 871-888. 10.1177/0269216320920533

Farnell, D. ORCID: https://orcid.org/0000-0003-0662-1927, Staffurth, J. ORCID: https://orcid.org/0000-0002-7834-3172, Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860, Ahmedzai, S., Andreyev, J., Green, J., Sanders, D. S., Ferguson, C. J., Pickett, S., Muls, A., O'Shea, R., Campbell, S. H., Taylor, S. E. and Nelson, A. 2020. The ALERT-B questionnaire: a screening tool for the detection of gastroenterological late effects after radiotherapy for prostate cancer. Clinical and Translational Radiation Oncology 21 , pp. 98-103. 10.1016/j.ctro.2020.02.002

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 2020. Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care. BMC Palliative Care 19 , 29. 10.1186/s12904-020-0532-4

Mazzaschi, Francesca, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Brain, Katherine, Powell, James and Nelson, Annmarie 2020. What are the cognitive deficits observed in adults with brain cancer after receiving radiotherapy or combined chemo-radiotherapy? Presented at: 11th EAPC World Research Congress, Online, 7-9 October 2020. Palliative Medicine. , vol.34 SAGE Publications, 10.1177/0269216320958098

Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moraes, Fabio Ynoe, Bulbeck, Helen, Torrens-Burton, Anna ORCID: https://orcid.org/0000-0002-2162-3739, Bernstein, Mark, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Fielding, Helen 2019. Early palliative interventions for improving outcomes in people with a primary malignant brain tumour and their carers. Cochrane Database of Systematic Reviews 2019 (9) , CD013440.. 10.1002/14651858.CD013440

Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Bowyer, Anna, Taylor, Sophia ORCID: https://orcid.org/0000-0002-3116-5647, Thomas, Kristen, Newman, Alisha ORCID: https://orcid.org/0000-0003-0401-1412, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Byrne, Anthony, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ Supportive & Palliative Care 9 (2) , pp. 219-224. 10.1136/bmjspcare-2015-000889

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley Christine ORCID: https://orcid.org/0000-0003-0170-7027, Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, Edwards, Michelle, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2019. Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ Supportive & Palliative Care 9 , e14. 10.1136/bmjspcare-2015-000892

Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Byrne, Anthony, Lester, Jason, Anagnostou, Despina and Sampson, Catherine 2019. Avoidable harm: making decisions about chemotherapy with advanced lung cancer patients. Presented at: NCRI 2019, Glasgow, UK, 3-5 November 2019.

Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Scott, Hannah, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Fitzgibbon, Jim, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Pickett, Sara, Seddon, Kathy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 54 Interventions and support for people bereaved through advanced progressive illness: a mixed-methods systematic review. BMJ Supportive and Palliative Care 8 (3) , pp. 380-381. 10.1136/bmjspcare-2018-mariecurie.54

Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Scott, Hannah, Seddon, Kathy, Fitzgibbon, Jim, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Pickett, Sara, Byrne, Anthony, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 30 Consensus and consistency: development of a core outcome set for evaluating bereavement support in palliative care [Poster abstract]. BMJ Supportive and Palliative Care 8 (3) , 371. 10.1136/bmjspcare-2018-mariecurie.30

Seddon, Kathy, Fitzgibbon, Jim, Harrington, Barbara, Morgan, Fiona ORCID: https://orcid.org/0000-0001-8602-9178, Scott, Hannah, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Pickett, Sara, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806, Byrne, Anthony, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 and Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3) , pp. 374-375. 10.1136/bmjspcare-2018-mariecurie.40

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Van Godwin, Jordan ORCID: https://orcid.org/0000-0001-5288-6614, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2018. Symptom management, nutrition and hydration at end-of-life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care 17 , 60. 10.1186/s12904-018-0314-4

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Edwards, M, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moore, B and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health & Illness 39 (8) , pp. 1448-1464.

Anagnostou, Despina ORCID: https://orcid.org/0000-0001-5297-2213, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Lester, Jason, Byrne, Anthony, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Longo, Mirella ORCID: https://orcid.org/0000-0002-9867-3806 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2017. Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study. BMJ Open 7 (7) , e015277. 10.1136/bmjopen-2016-015277

Woodman, Caroline, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2016. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Supportive and Palliative Care 6 (4) , pp. 418-429. 10.1136/bmjspcare-2014-000794

Taylor, S. ORCID: https://orcid.org/0000-0002-3116-5647, Byrne, A., Adams, R. ORCID: https://orcid.org/0000-0003-3915-7243, Turner, J., Hanna, L., Staffurth, J. ORCID: https://orcid.org/0000-0002-7834-3172, Farnell, D. ORCID: https://orcid.org/0000-0003-0662-1927, Sivell, S. ORCID: https://orcid.org/0000-0003-0253-1860, Nelson, A. ORCID: https://orcid.org/0000-0002-6075-8425 and Green, J. 2016. The three-item ALERT-B questionnaire provides a validated screening tool to detect chronic gastrointestinal symptoms after pelvic radiotherapy in cancer survivors. Clinical Oncology 28 (10) , e139-e147. 10.1016/j.clon.2016.06.004

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Edwards, Michelle, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Moore, Barbara and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. 'I didn't really understand it, I just thought it'd help': exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials 17 (1) , 329. 10.1186/s13063-016-1460-8

Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Godwin, Jordan van, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2016. Palliative and end of life care priority setting partnership (PeolcPSP): Bereavement: experiences, needs and supportive interventions. [Project Report].

Noble, Simon I. ORCID: https://orcid.org/0000-0001-5425-2383, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Fitzmaurice, David, Bekkers, Marie-Jet, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Canham, Joanna ORCID: https://orcid.org/0000-0003-3482-0990, Smith, Joanna D. ORCID: https://orcid.org/0000-0003-4234-6686, Casbard, Angela ORCID: https://orcid.org/0000-0001-6241-3052, Cohen, Ander, Cohen, David, Evans, Jessica, Fletcher, Kate, Johnson, Miriam, Maraveyas, Anthony, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027 and Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631 2015. A feasibility study to inform the design of a randomised controlled trial to identify the most clinically effective and cost-effective length of Anticoagulation with Low-molecular-weight heparin In the treatment of Cancer-Associated Thrombosis (ALICAT). Health Technology Assessment 19 (83) , pp. 1-94. 10.3310/hta19830

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Lidstone, V., Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609, Thompson, C. and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study. BMJ Supportive & Palliative Care 5 (3) , pp. 306-315. 10.1136/bmjspcare-2013-000595

Durand, Marie-Anne, Witt, J., Joseph-Williams, Natalie J. ORCID: https://orcid.org/0000-0002-8944-2969, Newcombe, Robert Gordon ORCID: https://orcid.org/0000-0003-4400-8867, Politi, M. C., Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Elwyn, Glyn 2015. Minimum standards for the certification of patient decision support interventions. Patient Education and Counseling 98 (4) , pp. 462-486. 10.1016/j.pec.2014.12.009

Woodman, Caroline, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2015. Relatives' preferred place of care at the end-of-life: implications for palliative care in the future. BMJ Supportive and Palliative Care 5 , pp. 116-117. 10.1136/bmjspcare-2014-000838.38

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, Anthony, Edwards, Michelle, Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Hopewell-Kelly, Noreen, Noble, Simon ORCID: https://orcid.org/0000-0001-5425-2383, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Conducting qualitative research interviews with palliative and end of life care patients in the home setting: reflections and recommendations from an academic palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 , 117. 10.1136/bmjspcare-2014-000838.40

Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Bowyer, Anna, Thomas, Kristen, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Taylor, Sophia, Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936, Newman, Alicia and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. The use of social media in a palliative care research centre [Conference Abstract]. BMJ Supportive and Palliative Care 5 , 120. 10.1136/bmjspcare-2014-000838.47

Best, Sabine, Tate, Theresa, Noble, Bill, Smith, Rhiannon, Tuft, Jennifer, Tracey, N., McCullugh, A., Eley, J., Black, J., Stockton, M., Cheeseley, A., Berry, L., Burton, C., Deschamps, A., Stevens, E., Penny, A., McEnhill, L., McNair, A., Cupid, B., Maseo, B., Chapman, D., McIllfatrick, S., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Van Godwin, Jordan, Candy, Bridgit, Beaumont, N. and Cowan, Katherine 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach to consulting patient, carers and clinicians. Presented at: Marie Curie Annual Palliative Care Research Conference 2015, London, UK, 27 March 2015.

Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Noble, S. 2015. Risky recruitment: feasibility of recruiting patients to a cancer associated thrombosis clinical trial - insights from an embedded qualitative study. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10th May 2015. pp. 2307-2312.

Woodman, Caroline, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2015. Family caregivers' preferences for place of care for patients at the end of life: implications of a systematic review for policy and practice. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 31-32.

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Byrne, A., Edwards, M., Harrop, Emily ORCID: https://orcid.org/0000-0003-2820-0023, Noble, S., Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Social spaces and singular encounters: challenges to conducting qualitative research interviews in palliative and end of life care in the home setting. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

Smith, R., Best, T., Tate, T, Noble, B., Tuft, J., Eley, J., Black, J., Stockton, M., Cheeseley, A., Berry, L., Loftus, R., Dechamps, A., Stevens, E., Penny, A., McEnhill, L., McNair, A., Cupid, B., Fryett, S., Kerr, A., McIllfatrick, S., Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Godwin, Jordan, Candy, B. and Cowan, K. 2015. Research priority setting in palliative and end of life care: the James Lind Alliance approach consulting patients, carers and clinicians. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 2529-2534.

Hopewell-Kelly, Noreen, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Bowyer, A., Thomas, Kristen, Prout, Hayley ORCID: https://orcid.org/0000-0003-0170-7027, Taylor, Sophia ORCID: https://orcid.org/0000-0002-3116-5647, Newman, A., Sampson, Catherine ORCID: https://orcid.org/0000-0002-5626-9936 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2015. Utilising data from social media in palliative care research: developing an ethical framework. Presented at: 14th World Congress of the European Association for Palliative Care, Copenhagen, Denmark, 8-10 May 2015. pp. 1121-1128.

Woodman, Caroline, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2014. Family caregivers' perceptions surrounding place of care for their relatives at the end-of-life and their perspectives on their relatives' chosen place of care. A qualitative systematic review and thematic synthesis. Presented at: 14th Annual All Wales Palliative Care Conference, Gregynog, Powys, Wales, 6-7 November 2014.

Joseph-Williams, Natalie ORCID: https://orcid.org/0000-0002-8944-2969, Newcombe, Robert ORCID: https://orcid.org/0000-0003-4400-8867, Politi, Mary, Durand, Marie-Anne, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Stacey, Dawn, O'Connor, Annette, Volk, Robert J., Edwards, Adrian ORCID: https://orcid.org/0000-0002-6228-4446, Bennett, Carol, Pignone, Michael, Thomson, Richard and Elwyn, Glyn 2014. Toward minimum standards for certifying patient decision aids: a modified Delphi consensus process. Medical Decision Making 34 (6) , pp. 699-710. 10.1177/0272989X13501721

Woodman, Caroline, Baillie, Jessica ORCID: https://orcid.org/0000-0002-4592-7286 and Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 2014. Attitudes of family caregivers towards place or care for their relatives at the end of life: A systematic review and thematic synthesis of the qualitative research. Presented at: Cardiff University Systematic Review Network SysNet Conference 2014, Cardiff, 4 June 2014.

Lidstone, Victoria, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609, Thompson, Catherine and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Transition in palliative care study day series. BMJ Supportive & Palliative Care 3 (S1) , A48-A49. 10.1136/bmjspcare-2013-000591.131

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Elwyn, Glyn, Edwards, Adrian ORCID: https://orcid.org/0000-0002-6228-4446 and Manstead, Antony Stephen Reid ORCID: https://orcid.org/0000-0001-7540-2096 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended theory of planned behaviour. BMC Medical Informatics and Decision Making 13 , 92. 10.1186/1472-6947-13-92

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286, Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446 and Manstead, Antony Stephen Reid ORCID: https://orcid.org/0000-0001-7540-2096 2013. Factors influencing the surgery intentions and choices of women with early breast cancer: the predictive utility of an extended Theory of Planned Behaviour [abstract]. Psycho-Oncology 22 (S1) , p. 12. 10.1111/j.1099-1611.2013.03239.x

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Lidstone, Victoria, Taubert, Mark ORCID: https://orcid.org/0000-0003-0454-5609 and Nelson, Annmarie ORCID: https://orcid.org/0000-0002-6075-8425 2013. Free communication FC 12.1 (oral abstract): Educating adult palliative care teams about the needs of transition age young people. What do they need to know? Presented at: 13th World Congress of the European Association for Palliative Care, Prague, Czech Republic, 30 May - 2 June 2013. European Journal of Palliative Care. suppl. p. 60.

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Manstead, Antony Stephen Reid ORCID: https://orcid.org/0000-0001-7540-2096, Reed, Malcolm W. R., Caldon, Lisa, Collins, Karen, Clements, Alison and Elwyn, Glyn 2012. Increasing readiness to decide and strengthening behavioral intentions: Evaluating the impact of a web-based patient decision aid for breast cancer treatment options (BresDex: www.bresdex.com). Patient Education and Counseling 88 (2) , pp. 209-217. 10.1016/j.pec.2012.03.012

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Marsh, William, Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Manstead, Antony Stephen Reid ORCID: https://orcid.org/0000-0001-7540-2096, Clements, Alison and Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286 2012. Theory-based design and field-testing of an intervention to support women choosing surgery for breast cancer: BresDex. Patient Education and Counseling 86 (2) , pp. 179-188. 10.1016/j.pec.2011.04.014

Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286, Kreuwel, Ilse, Durand, Marie-Anne, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Joseph-Williams, Natalie J. ORCID: https://orcid.org/0000-0002-8944-2969, Evans, Rhodri and Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446 2011. How to develop web-based decision support interventions for patients: a process map. Patient Education and Counseling 82 (2) , pp. 260-265. 10.1016/j.pec.2010.04.034

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286 and Manstead, Antony Stephen Reid ORCID: https://orcid.org/0000-0001-7540-2096 2011. Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions? Health Expectations 14 (s1) , pp. 6-19. 10.1111/j.1369-7625.2009.00558.x

Caldon, Lisa J. M., Collins, Karen A., Reed, Malcolm W., Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Austoker, Joan, Clements, Alison M., Patnick, Julietta and Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286 2011. Clinicians' concerns about decision support interventions for patients facing breast cancer surgery options: understanding the challenge of implementing shared decision-making. Health Expectations 14 (2) , pp. 133-146. 10.1111/j.1369-7625.2010.00633.x

Caldon, L., Walsh, K., Collins, K., Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Evans, R., Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286 and Reed, Matthew 2009. New technologies to support the decisions of women facing surgical choices for breast cancer: the reactions and concerns of health professionals [Abstract]. Psycho-oncology 18 (3) , p. 320. 10.1002/pon.1549

Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286, O'Connor, Annette M., Bennett, Carol, Newcombe, Robert Gordon ORCID: https://orcid.org/0000-0003-4400-8867, Politi, Mary, Durand, Marie-Anne, Drake, Elizabeth, Joseph-Williams, Natalie J. ORCID: https://orcid.org/0000-0002-8944-2969, Khangura, Sara, Saarimaki, Anton, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Stiel, Mareike, Bernstein, Steven J., Col, Nananda, Coulter, Angela, Eden, Karen, Härter, Martin, Rovner, Margaret Holmes, Moumjid, Nora, Stacey, Dawn, Thomson, Richard, Whelan, Tim, van der Weijden, Trudy and Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446 2009. Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 4 (3) , e4705. 10.1371/journal.pone.0004705

Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Gray, Jonathon, Clarke, Angus John ORCID: https://orcid.org/0000-0002-1200-9286, Dundon, Joanna, Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286, Gaff, Clara Louise, Hood, Kerenza ORCID: https://orcid.org/0000-0002-5268-8631, Iredale, Rachel, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Shaw, Christine and Thornton, Hazel 2008. Interventions to improve risk communication in clinical genetics: systematic review. Patient Education and Counseling 71 (1) , pp. 4-25. 10.1016/j.pec.2007.11.026

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286, Gaff, Clara Louise, Clarke, Angus John ORCID: https://orcid.org/0000-0002-1200-9286, Iredale, Rachel, Shaw, Christine, Dundon, Joanna, Thornton, Hazel and Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446 2008. How risk is perceived, constructed and interpreted by clients in clinical genetics, and the effects on decision making: systematic review. Journal of Genetic Counselling 17 (1) , pp. 30-63. 10.1007/s10897-007-9132-1

Iredale, Rachel, Rapport, Frances, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Jones, Wendy, Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Gray, Jonathon and Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286 2008. Exploring the requirements for a decision aid on familial breast cancer in the UK context: a qualitative study with patients referred to a cancer genetics service. Journal of Evaluation in Clinical Practice 14 (1) , pp. 110-115. 10.1111/j.1365-2753.2007.00811.x

Gaff, Clara Louise, Clarke, Angus John ORCID: https://orcid.org/0000-0002-1200-9286, Atkinson, Paul Anthony ORCID: https://orcid.org/0000-0001-7367-8160, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286, Iredale, Rachel, Thornton, Hazel, Dundon, Joanna, Shaw, Christine and Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446 2007. Process and outcome in communication of genetic information within families: a systematic review. European Journal of Human Genetics 15 (10) , pp. 999-1011. 10.1038/sj.ejhg.5201883

Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Iredale, Rachel, Gray, Jonathon and Coles, Bernadette Mary ORCID: https://orcid.org/0000-0003-0695-2865 2007. Cancer genetic risk assessment for individuals at risk of familial breast cancer. Cochrane Database of Systematic Reviews 2 , CD003721. 10.1002/14651858.CD003721.pub2

Rapport, Frances, Iredale, Rachel, Jones, Wendy, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Edwards, Adrian G. ORCID: https://orcid.org/0000-0002-6228-4446, Gray, Jonathon and Elwyn, Glyn ORCID: https://orcid.org/0000-0002-0917-6286 2006. Decision aids for familial breast cancer: exploring women's views using focus groups. Health Expectations 9 (3) , pp. 232-244. 10.1111/j.1369-7625.2006.00392.x

Brain, Katherine Emma ORCID: https://orcid.org/0000-0001-9296-9748, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Bennert, Kristina, Howell, Lucy ORCID: https://orcid.org/0000-0002-8263-7130, France, L., Jordan, S., Rogers, Mark, Gray, Jonathon and Sampson, Julian Roy ORCID: https://orcid.org/0000-0002-2902-2348 2005. An exploratory comparison of genetic counselling protocols for HNPCC predictive testing. Clinical Genetics 68 (3) , pp. 255-261. 10.1111/j.1399-0004.2005.00491.x

Smith, Andrew Paul ORCID: https://orcid.org/0000-0001-8805-8028, Brice, Carolyn Frances, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860, Wadsworth, Emma Jane Kirsty ORCID: https://orcid.org/0000-0001-8656-5907 and Wellens, Benjamin T. 2001. The combined effects of occupational factors on objective measures of performance and health. Hanson, Margaret A., ed. Contemporary Ergonomics 2001, London: Taylor & Francis, pp. 203-208.

Smith, Andrew Paul ORCID: https://orcid.org/0000-0001-8805-8028, Brice, Carolyn Frances, Sivell, Stephanie ORCID: https://orcid.org/0000-0003-0253-1860 and Wellens, Benjamin Thomas 2001. The combined effects of occupational factors on subjective reports of health. Hanson, Margaret A., ed. Contemporary Ergonomics 2001, London: Taylor & Francis, pp. 197-202.