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40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]

Seddon, Kathy, Fitzgibbon, Jim, Harrington, Barbara, Morgan, Fiona, Scott, Hannah, Sivell, Stephanie, Pickett, Sara, Longo, Mirella, Byrne, Anthony, Nelson, Annmarie and Harrop, Emily 2018. 40 Detailing public involvement (PI) within a study of bereavement support services for adults bereaved through advanced illness [Poster Abstracts]. BMJ Supportive and Palliative Care 8 (3) , pp. 374-375. 10.1136/bmjspcare-2018-mariecurie.40

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Abstract

Introduction Adults experiencing a loss might develop complicated grief reactions which is associated with mental and physical health problems. This study included a systematic review of the evidence and the development of a core outcome set for bereavement research in palliative care. Public involvement was integral throughout. The collaborative relationship with the research partners (RPs) was fully planned and then documented through reflective log sheets. Aim To detail the research partners’ contribution to the study. Methodology RPs helped refine the RQ. The study protocol set out the steps needed to ensure that: Research design and methods used were appropriate for bereaved adults Study documentation and outputs were accessible to ‘lay’ readers RPs ‘experience based’ expertise was embedded in ongoing project planning outputs and future research design The experience for RPs was worthwhile leading to new skills and knowledge Reflective log sheets were used to capture how well this was achieved. These were completed independently by the researcher and RPs. Their reflections were shared at quarterly meetings. Results The reflective logs confirmed that steps one to five were carried out. RP inputs achieved the planned impact (e.g. the questionnaires held hardly any missing data reflecting content and face-validity). Enhancement of the bereavement research through planned documented collaboration was thus confirmed. Conclusion Well planned and documented PI enhances the quality of health care research. Researchers felt that the solid collaboration with the research partner broadened their perspective and signalled a clear departure from a simple tick box exercise.

Item Type: Article
Date Type: Publication
Status: Published
Schools: Medicine
Publisher: BMJ Publishing Group
ISSN: 2045-435X
Date of Acceptance: 1 September 2018
Last Modified: 31 Jan 2019 23:39
URI: http://orca-mwe.cf.ac.uk/id/eprint/115966

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