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The 'gift' of life? Individual and family perceptions of organ donation

Harrold, Jonathan 2018. The 'gift' of life? Individual and family perceptions of organ donation. ClinPsy Thesis, Cardiff University.
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Abstract

Paper One reports a systematic review of qualitative literature involving bereaved families who were approached about organ donation at the end-of-life of their relative. The review aimed to understand the implications of the decision at least six-months after the bereavement. Fifteen studies were included in the review and were critically appraised using a quality appraisal tool. A meta-ethnographic approach yielded three themes: An ongoing relationship with the donor; The psychological impact of the decision; Support in grief. The findings are discussed in relation to the complicated grief literature. Paper Two reports a mixed-methods study, which utilised the Self-Regulation Model of Illness and Interpretative Phenomenological Analysis. People living with chronic kidney disease and pre-dialysis were surveyed (n=31) and interviewed (n=8) about their illness and treatment beliefs and experiences regarding pre-emptive living donor kidney transplantation. Responses suggested illness perceptions and treatment knowledge inform treatment preferences. Four master themes emerged from the qualitative analysis (My Kidney and I; Co-constructing Decisions; A Kidney Shared as a Problem Solved?; and Navigating the Unknown), which described the complexity the option of living donation may present to people. A desire for enhanced self-management information to delay illness progression was found.

Item Type: Thesis (DClinPsy)
Date Type: Completion
Status: Unpublished
Schools: Psychology
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Date of First Compliant Deposit: 14 September 2018
Date of Acceptance: 13 September 2018
Last Modified: 08 Oct 2019 02:27
URI: http://orca-mwe.cf.ac.uk/id/eprint/114935

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