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Understanding the needs and preferences of patients with cancer regarding an app to help them to meet their information needs: development of the ‘Ask Us’ cancer app

Richards, Becky 2017. Understanding the needs and preferences of patients with cancer regarding an app to help them to meet their information needs: development of the ‘Ask Us’ cancer app. PhD Thesis, Cardiff University.
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Abstract

Patients with cancer, and their relatives, often have unmet information needs during the course of their illness. Within the NHS, there has been a shift from inpatient to outpatient cancer care, which has meant that patients are receiving less direct, regular supervision from their clinicians. The introduction of Smart technology has presented an opportunity to deliver interventions to patients, and their relatives, remotely. The aims of this thesis were to: (1) understand the needs and preferences of patients with cancer regarding an app to help them to meet their information needs in non-inpatient settings, and (2) to develop an app for patients, which may also be used by relatives, based on their identified needs and preferences. A qualitative study with patients and their relatives identified several barriers to information-gathering and understanding that occur during and between patientclinician consultations, which lead to unmet information needs. Patients and their relatives reported that an app intervention, which could help them to overcome these barriers and enable them to meet their information needs, would be useful. A qualitative study with cancer clinicians explored their opinions on the value of this type of app and clinicians appeared to be supportive of its development and use in consultations. The ‘Ask Us’ app was then designed and user-tested with patients in the community. Patients perceived the app to be a useful and acceptable intervention to help them to meet their information needs. A range of benefits were reported by patients and some barriers to app use were highlighted. Overall, the ‘Ask Us’ app appears to be a feasible intervention to support patients with cancer in the community.

Item Type: Thesis (PhD)
Date Type: Completion
Status: Unpublished
Schools: Medicine
Subjects: Q Science > QA Mathematics > QA76 Computer software
R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology (including Cancer)
Funders: Tenovus
Last Modified: 16 Apr 2021 13:47
URI: https://orca.cardiff.ac.uk/id/eprint/111076

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